Skip to main content

Just The Way You Are - Disability Days on the Hill

         The state legislature often hosts "Days on the Hill" for a wide array of groups or topics. The name "Day on the Hill" comes from the fact that the capitol building is perched atop a high hill right in the middle of downtown Nashville, and the day gives people a chance to gather for at wide variety of topics. Anyone can come to the state capitol and speak with legislators at any time that the legislature is in session, but attending during a "Day on the Hill" lets legislators know you are passionate about an issue. 

     Days on the Hill are a very important part of the legislative process because they are one major way that legislators get informed about topics and how their constituents stand on certain issues. It is also a way to make a presence. When dozens or even hundreds of people gather for a common cause, those who create our laws have no choice but to pay attention. It is also a great opportunity to form a relationship with those who represent you in the law making body of our state government. Still need a few more reasons to attend? It provides a chance to meet with others involved in the disability community and to learn the latest on policies and legislation that affect the disabled community.

     This year the Tennessee Disability Coalition is  hosting three days known as "Disability Day on the Hill." This is your chance to meet with your senators and representatives and let them know what's important to you and why, when it comes to disability advocacy. The three Disability Days on the Hill this year are on February 29th, March 7th, and March 14th. On February 29th, Jim Henry, the Commissioner of the Department of Intellectual and Developmental Disabilities will speak. On March 7th, the speaker will be Tre Hargett, the Secretary of State. On March 14th, the subject will be the Family Support Program.

     I encourage everyone to attend at least one of these Days on the Hill. These events aren't just for people who have disabilities. If you know or love someone with a disability, work with people with disabilities, or are just passionate about disability advocacy, then you should mark your calender and plan on attending! Make your voice known and let your legislators know what's important to you. Sarah Sampson, the Communications Coordinator for the Tennessee Disability Coalition, calls Disability Days on the Hill the ". . .treasure of the coalition." Go ahead and call your senator and your representative now and schedule an appointment to meet with them for ten or fifteen minutes to discuss disability issues with them. For your convenience, the Courier lists your legislators' names and contact information in the paper every week!

    Once you get an appointment made, began doing your research and finding out exactly what you want to say to your legislator. You don't have to write a formal speech, or make a PowerPoint presentation, but you do need to be prepared to advocate for disability issues. Pick out one or two things that are most important to you and focus on those. Find out everything you can about those issues and prepare a few statements that you want to make to your legislators. You should state what issue you are discussing, which way you want your legislator to vote, and why you want them to vote that way. Let them know how voting in the opposite will adversely affect the disability community.

     Ms. Sampson informed me of the hot topic this year among the disability community.  Since much of the disabled community is supported by state and federal funding, she explained, the budget is always one of the most significant issues. This year the Family Support Program is especially high on the agenda because it is not included in Governor Haslem's 2012-2012 budget.

     There is a ton of information on about Disability Days on the Hill including a link to an email to ask any questions you may have. You can find the dates and information about the happenings on each day of the event and also links to contacting your legislators, tracking their actions and votes in committees and sessions, and keeping up with the latest on disability issues in the legislature. This website is loaded full so please go and check it out!

     Thanks for reading, and as always, if you have comments, questions, or ideas, please e-mail me at


Popular posts from this blog

Why I Won't Allow My Toddler to Have Cosmetic Surgery

It strikes me as odd that I have been asked many, many times if I will have Christian undergo cosmetic surgery to repair his birth defect. Apparently, it's not an odd question to most people, because I could not tell you how many times I've been asked. The number literally lurks somewhere close to 500, if I had to guess. I am not AT ALL offended by the question, and I enjoy explaining my answer, but still, I find it odd to be asked. Imagine your beautiful child that you simply adore. Her little button nose, those ears he got from his daddy, that little smile with that one not-so-straight tooth right up front, those freckles that dot her cheeks, that bright red hair, or that jet black hair. As you imagine that, I am sure you have a few emotions that go along with it: adoration, admiration, love. You probably think that your child is the prettiest thing you've laid eyes on. Well, when I look at my child, with tissue in the place of where eyes should be, and a crooked s

My Experiences with Bullying

For anyone who follows us on Facebook, you have probably, at one time or another, seen someone make a rude or hateful comment on a photo I've posted of Christian. It has been happening pretty much since he was born. In fact, much of the reason that I decided to make the video that went viral was because of all the negative comments that we would receive, whether through social media or face to face when we were out in public with Christian. And I have to say, I am tired of it. I sometimes find myself unable to deal with a hateful comment on a particular day, or exhausted with the idea of checking my email and finding another rude comment left on my YouTube Channel. So this blog is my outlet to vent my frustrations and share my wisdom on the matter. I consider myself a professional at handling bullying, after all, considering all the bullying I've dealt with over the last few years. At first, the comments hurt. I remember the day that I first took Christian out in in public

If it Was Easy

Last week we visited Tennessee School for the Blind. This was a trip that I have been hearing about for about a year. I’ve known it was coming, but I had no idea what to expect. There was some anticipation with a touch of dread mixed in about this trip.  The purpose of this visit was an evaluation. That single word is too small to really describe what all took place, really. Christian was evaluated on pretty much everything. His vision was checked (no brainer, but they did have an ophthalmologist just take a look, to confirm his vision impairment. It’s always good to have it documented on paper.) The school AKA TSB also brought in physical, occupational, and speech therapists, vision teachers, orientation and mobility specialists, assistive technology experts, a psychologist, and just an entire array of specialists to do this evaluation. He was ranked against other blind children his age to get a more accurate measure because it doesn’t really give us a good picture to try to co