The Cleft Lip & Palate Foundation of Smiles began in 2009, and their mission is "to educate and bring awareness to others around the world whose lives are being touched by cleft lip and/ or palate and other Craniofacial anomalies by providing Support, Education, Advocacy, and Research."
My title on the board will be National Newsletter Coordinator. I have been brain storming lately on a way to keep all my cleft and craniofacial families connected and reach out to them. So as the creator of the Foundation and I were chatting one day, I happen to mention the idea I had of starting some sort of news letter. I, however, lacked the platform to be able to take on such a huge responsibility. Rachel then called me a few days later and pitched the idea of giving me the platform to coordinate the newsletter! My responsibilities will include gathering and approving the information that goes into the newsletter and the layout and design. I am so thrilled and honored to be asked to undertake such a huge and fulfilling responsibility.
Through the Cleft Lip & Palate Foundation of Smiles, families can learn a lot of information about clefts, find local support groups, apply for assistance in purchasing special feeders, read smile stories of children with craniofacial differences, learn about IDEA (Individuals with Disabilities in Education Act) and IEP's (Individualized Education Plans) for children who will need special education in the school system, and sign your child up to receive cards from foundation members during hospital stays, to name a few things.
The Foundation is an ever growing and adapting foundation that is always finding new ways to reach out to its families to provide support, education, advocacy, and research. It is also a VAST resource. The Foundation provides tons of useful information to its members as well. It is a must-have resource for all craniofacial and cleft families!
You can find the Foundation's website at www.cleftsmile.org.
You can also join their Facebook page at http://www.facebook.com/rachel.mancuso1
Please also visit the Cleft Lip & Palate Foundation of Smiles donation page. The Foundation is about to begin a campaign fundraisier to raise $25,000 to help it's member families in need!!!!