Skip to main content

Christian's bio in short - had to write this for something else and wanted to post it here!


Christian is a happy little boy who loves life. His favorite things are his Mama, his Nana, swimming, and music. He loves playing musical instruments, especially piano, guitar and drums, although as of yet he is still learning melody! :)

Christian was born with a birth defect called Tessier cleft lip and palate. This birth defect has only about 50 documented cases in the world. Christian's classification of Tessier cleft caused his eyes to cleft as well as his mouth, which means that he is blind.

Christian has had 3 surgeries so far and faces dozens more to repair his cleft. He has defeated all the odds and defied what doctors have said over and over. We were told that Christian wouldn't live once he was born. Not only did he live, he is a thriving and healthy little boy. We were told that Christian would be mentally impaired as well. Christian has proven to be smarter than many kids his age who have sight. Christian has never let his disability define who he is, or allow it to hold him back!

Our journey has not been an easy one, but it's definitely been worth every minute and every step we've taken. It's been hard dealing with people's reactions to Christian's appearance. We've had people stare or make rude comments to us about the way he looks many, many times. But recently, I posted a video to YouTube about our journey and how amazing Christian is, and the response has been amazing! Around 11 million people have watched the video and Christian's life has changed lives all over the world. Thousands of people have contacted me to let me know how Christian has touched them and helped them in some way.

I know that Christian is fearfully and wonderfully made, and that God's plans for him are so good! I am so proud of Christian for everything he has accomplished in his short life, and I can't wait to see all God has in store for him!

Comments

  1. Thank you for your updates & continuing to share your precious gift from God with us!! :)

    ReplyDelete
  2. God bless Christian and your family always.

    ReplyDelete
  3. Great! I am one of the thousand of people who saw the video.

    Let we do as our great Shepherd. (He gathers the lambs in his arms and carries them close to his heart; He gently leads those that have.)

    You and your boy are in my heart.

    ReplyDelete
  4. Hi Lacey, my son Seth has a bilateral cleft lip and palet and when I saw your video I was truely amazed. I wanted to add you on facebook to exchange stories/pics but you have too many fb friends! Haha. Send me a fb message if you'd like (: my name is Shelby Knight (Australia) and my profile picture is of me holding my adorable son (: hope to hear from you! x

    ReplyDelete
  5. Amazing! Respect to you and your family!!! You all and Christian will be in my heart!!! <3

    ReplyDelete

Post a Comment

Popular posts from this blog

Was That Rude?

At the Christmas parade last weekend!  Hey everyone! Christian and I experienced something recently that I wanted to talk about and share with you all! We were at his therapy center for him to do his regular physical and feeding therapy, and we were standing at the car because his therapist comes out to the car to get him to go into therapy and then  brings him back outside to the car so that we aren't waiting in the lobby. We have been really cautious since long before COVID was a thing about germs and illness because illnesses always seem to hit Christian really hard.  And then of course my dad almost died in February from COVID. So we just try to stay out of heavily populated places when we can and take common sense precautions like regular handwashing. So, one way we try to keep the germs down is to not wait inside the lobby of Christian's therapy center and instead we just wait in the car for therapies.  So anyway, we were standing next to our car with his therapist, and a

Why I Won't Allow My Toddler to Have Cosmetic Surgery

It strikes me as odd that I have been asked many, many times if I will have Christian undergo cosmetic surgery to repair his birth defect. Apparently, it's not an odd question to most people, because I could not tell you how many times I've been asked. The number literally lurks somewhere close to 500, if I had to guess. I am not AT ALL offended by the question, and I enjoy explaining my answer, but still, I find it odd to be asked. Imagine your beautiful child that you simply adore. Her little button nose, those ears he got from his daddy, that little smile with that one not-so-straight tooth right up front, those freckles that dot her cheeks, that bright red hair, or that jet black hair. As you imagine that, I am sure you have a few emotions that go along with it: adoration, admiration, love. You probably think that your child is the prettiest thing you've laid eyes on. Well, when I look at my child, with tissue in the place of where eyes should be, and a crooked s

Don't Get Your Pleasure From My Pain

Hey guys! Thank you so much for joining  me  today on my blog! I've got something today that I want to talk about that has just fired  me  up, you guys. And so let's just jump right into it. I'm going to share a screen capture here for you guys.  I received a comment a few days ago on a video I posted. The video is of  me  holding Christian while Christian smiles. During the video, I give him a kiss on the cheek while a song plays in the background. The video text says "When people tell  me  that Christian shouldn't have been born" and then the lyrics to the song says "Let  me  show you what you're missing. Paradise."  So somebody actually had the... I don't even know what the word is... I would say low intelligence, but I don't even think it comes from that, and I don't want to insult people with intellectual disabilities because they know how to be decent humans. But the had the audacity or gall or whatever to comment on that video